May 23, 2018

Three years ago Governor Walker decided to establish two programs for long term care for the elderly and people with disabilities.  The counties used to manage long term care for residents with special needs.  The purpose was to give more options to the disabled while saving the state money.  The first program is called Iris which is a nonprofit and a self-directed allowing disabled people to manage their care plan budget with the help of a broker.  The second program is Family Care, which a profit care management business for hundreds of disabled people who are often incapable of managing their care plan budget.  Sadly, residents of group homes don’t get showers on the weekends since there is only one care attendant working the weekend and sometimes during the week.  Also, residents can only go out twice a week unless they “go to work” and services are being cut or eliminated like my home bound roommate’s weekly massage was eliminated.  It was not medical necessary.  The massage was the highlight of his week.  Why are we taking away things from people who have so little?

I’m not writing this week.  I’m working my two part-time jobs critiquing papers and rewriting meeting notes.  I will make over two hundred dollars this month.  I’m still unemployable and I will always be. And Care Wisconsin wants me “to go to work.” I’m just a failure and a statistic to the system.   I don’t care.  I’m an author.

Livin’ the Dream

May 7, 2018

Life is so good.  Saturday I went to a group book signing after going to the farmer’s market.  I talked to authors who I know and talked shop.  Authors are the best medicine for me.  They remind me how far I have come since Mom has passed.  When Mom passed, my dear friend, Patti, who retires in two weeks from Madison College offered encouragement and wisdom as I struggled with my new life.  I wanted to quit but Patti wouldn’t let me.  My counselor who is leaving to live in New York has me seen grow into a man, overcoming life challenges.  Saturday night I went to my bar where I greeted with a beer and danced with a woman.  This is life and I am living it.  And Care Wisconsin wanted me to stop going to my bar because “We can’t be liable.” And I was told that I only two times a week since I don’t “Go to work.”  Care Wisconsin lost an author after reducing the funding for my care and to many disabled people in order to make a profit for their shareholders.  Wisconsin is slowly going back to institutions for long term care.  Sunday I was at the Memorial Union and I saw another writer.  We talked.  I see how much people care about me while enjoying the beautiful afternoon on the terrace. Attendants come and go.  Some say that no one cares about me, but I know better.