May 25, 2016
My case manager is a special woman. She is the house manager, trying to make the staff and the consumers happy. That can be impossible at times. She dashes here and there, sometimes without a break, unlike my staff who complain about everything. She does the payroll, the schedule, cooks, cleans, runs errands and takes care of us. She held my hand in the ER. She is like Mom. I call her Mom.
May 17, 2016
I have money now. Sometimes it creates problems for me, like when my attendants ask for money to cut my hair or fix my wheelchair. I’m careful with my money. I don’t order out like my roommate does every day. All he does is eat. I keep my money for computers, publicly, vacations, editing and hotel rooms for a special night! I’m not rich like some of my attendants think I am. I want to travel and experience life. That will take money! I will not waste it.
May 8, 2016
It’s Mother’s Day this week. Mom was the best mother. She always listened to me. Mom never complained or wanted anything. She just gave, gave and gave to me! Mom always believed in my dream of being a known author despite the naysayers. Well, we are close. The dream will come true someday soon, Mom! Thank you. I miss you! Love, your author.
May 2, 2016
It’s weird to have money now! My Mom kept my SSI and I never got an allowance. I always had what I needed and wanted. My only money was from critiquing papers which isn’t much. But I have money, but it just accumulates in my bank account along with the money from my e job. I can only have fifteen hundred dollars in my account in order to remain eligible to receive services. I never wanted much. Money is precious to me! And now I have a career. One book is in New York right now while the second book is being edited. I could have two books published by the end of the summer. People will say that’s remarkable etc. I have heard that all of my life. It’s meaningless. Authors don’t make much money and I probably won’t. I’m okay with it! Money doesn’t matter to me. My point is the system forgets about the talented physically disabled like a CP painter or authors who work everyday at their craft. It takes money to build a career. Isn’t that the American goal to prosperity? But the talented physically disabled are tied to stupid rules that inhabit our opportunities for the American dream. That’s why some physically disabled commit suicide or give up. My roommates have given up.
They are slowly waiting to die. The system and the government wants the disabled to be happy. But why must we have these income limits when care attendants are under paid? Is it my fault that my new electric wheelchair will cost thirty thousand dollars or my communication device will cost eight thousand? It will take thousands of dollars to take care of me for the rest of my life. Society doesn’t owe me anything. But I deserve a chance at the American dream like everyone else. That is what makes America great!