Good system, bad system

July 21, 2014

The Community Integration Program\Community Options Program (cipcop) helps the disabled with assisted devices like purchasing computers and helps get the disabled out in the community.  The program bought my computer and the Morse code input device.  It pays my care attendants to take me out places.  I receive fourteen hours of cipcop a week to go places, which I rarely do.  Most disabled people go out a lot, but I don’t.  I’m writing!  But I did hire my care attendant’s boyfriend to watch sports with me.  Most of my cipcop hours go unused.  That’s thousands of dollars designed to improve my quality of life.  I want to use some of the money for promote my books and self publish a book.  But the system won’t help me with financial assistance to enhance my writing career.  Most disabled people don’t have careers.  Self publishing a book would cost about a thousand dollars on Amazon.  I would set my retail price and start earning some income to to go places, thus improving my quality of life!  But the system doesn’t know what to do with educated talented physically disabled people.  It’s sad.

Annual Hoop Jumping

July 14, 2014

My case manager will come over to help Mom fill out the year-review paperwork.  The State wants to know how much I make a year and how much money I have in my checking account in order to continue to provide home health care.  According to the State my Social Security is too high.   That is why I have to “work” critiquing particular for three hundred dollars.  I have two thousand dollars in my checking account.  Dumb bureaucrats will review my year review and probably will reject it.  The system is a joke!  Other disabled people don’t work and receive care.  The State needs to provide care for all of its disabled.  The employment and the income rules needs to be eliminated.  But what do I know?  I’m just a number. 

Life is never easy,

July 8, 2014

It’s what you make of it that counts.

It’s my Aunt Joyce’s birthday on the Fourth of July this week.  I remembered when she shared her birthday with me about forty years ago.  After I came home from the hospital battered, bruised and confused from my father’s first suicide attempt.  I barely survived.  Aunt Joyce greeted me at my grandparents house saying that I can pick anything that I want to eat for supper.  I asked for macaroni, watermelon and ice cream.  My favorite foods.  I want to thank her for her love and kindness during that time.  Happy Birthday, Aunt Joyce